PREGNANCY BED REST

RESOURCES FOR FAMILIES

RESOURCES TO HELP YOU AND YOUR FAMILY COPE

Organizations and Support Groups

Organizations and Support Groups

These are some information sources related to high risk pregnancy. Many have email or 800 numbers to contact. Let us know if you have other sources to add to this list that have been helpful to you. (We do not endorse any of the groups, organizations, or businesses below)

Sidelines. A national high risk pregnancy information and telephone support group. The volunteers in this group consist of women and their families who have previously had a high risk pregnancy and have faced various difficulties. The organization will provide written material and phone consultation if desired. They have an excellent magazine called "Left Sidelines" which can be purchased for $3.50 and is well worth the money. In the back of the magazine is a list of resources and a list of questions to ask the doctor when you are first placed on bed rest to help determine what activity is permitted and what is not. Contact Candace Hurley, Executive Director. P. O Box 1808, Laguna Beach, CA 92652. Telephone: 714 497-2265, FAX 714 497-5722.

Confinement Line. Care of Childbirth Education Association
P.O. Box 1609, Springfield, VA 22151 (703) 941-7183

Support web site for parents of premature babies. www.preemieparentsupport.com

International Childbirth Education Association (ICEA). Information about classes, breastfeeding, and parenting, with mail-order bookstore. P.O. Box 20048, Minneapolis, MN 55420-0048 (612) 854-8660.

CSEC Inc. Cesarean Section Information
22 Forest Road, Framingham, MA 01701 (508) 877-8266

La Leche League International. Provides information, education, and support for women who want to breastfeed. (847) 519-7730

National Organization for Rare Disorders (NORD). Offers specific information on rare conditions. P.O. Box 8923, New Fairfield, CT 06812-8923, or call (800) 447-6673.

National Parent to Parent Support and Information System, Inc. (NPPSIS). Links families whose children have special health care needs and/or rare disorders (800) 651-1151.

Mothers United for Moral Support (MUMS). Organization for parents or care providers of a child with any disability, disorder, chromosomal abnormality or health condition.
(414) 336-5333.

Financial, Legal, Childcare Resources

NFCC. Will help find a local, nonprofit counselor to provide information about how to handle credit/debt problems. 8611 Second Avenue, Suite 100, Silver Spring, MD 20910 (301) 589-5600

Women's Legal Defense Fund. If you have questions regarding discrimination caused by a pregnancy disability. National Partnership for Women and Families, 1875 Connecticut Avenue, NW, Suite 710, Washington DC 20009 (202) 986-2600.

Women's Information Bank. Offers help finding child care and housing, and help with other problems. 3918 W Street, NW, Washington DC 20007 (202) 338-8163.

American Council of Nanny Schools. Can provide you with a list of accredited schools, some of which have placement agencies, to help you care for other children in your home. A-71 Delta College, 1961 Delta Road, University Center, MI 48710 (517) 686-9470

Emergency Child Care. Child care information and referral files provide information regarding licensed centers and licensed family day care homes and financial assistance. Washington Child Development Council (WCDC), 2121 Decatur Place, NW, Washington DC 20008, (202) 387-0002.

Grief Support

Bereavement Services, Resolve Through Sharing. Support and information about pregnancy and infant loss. Gundersen Lutheran Medical Center, 1910 South Avenue, LaCrosse, WI 54601 (800) 362-9567 ext. 4747.
email: berserv@lhl.gundluth.org

SHARE. Offers support for parents experiencing pregnancy and infant loss. St Joseph's Health Center, 300 First Capitol Drive, St. Charles, MO 63301. (800) 821-6819.

The Compassionate Friends. Support groups and services for those who have experienced miscarriage or infant death. P.O. Box 3696, Oak Brook, IL 60522-3696. (630) 990-0010.

CLIMB. Support for those who have experienced multiple infant loss. Center for Loss in Multiple Birth, P.O. Box 1064, Palmer, AK, 99645. (907) 746-6123

Preemie Clothing:

Premiewear. A company specializing in clothing for premies or low birth weight babies, featuring a full line of hospital and going home outfits for the world's tiniest miracles. Premiewear outfits keep you baby warm, comfortable, and looking great! For a free catalog, call (800) 992-8469 or (916) 823-9883.

Tiny Bundles. Mail order company offering immediate delivery of unique handmade preemie clothing, diapers, and specifically designed pacifiers for the premature of low birth weight baby. Call for a free brochure (619) 451-9907, or write to 11468 Ballybunion Square, San Diego, CA 92128.

The Preemie Store and More. Mail order catalog with an assortment of wonderful preemie clothing for hospital or home, as well as birth announcements, pacifiers, dairies, and preemie books. (800) O-SO-TINY , (676-8469).

Multiple Birth

Center for the Study of Multiple Birth. Mail order publications, medical referrals.
333 E. Superior Street 476, Chicago, IL, 60611. (312) 266-9093.

Mothers of Supertwins (MOST). a non-profit organization devoted to education, information, and resources for families expecting triplets or more. Newsletter, parent pack, networking. For more information, call or write MOST, P.O. Box 951, Brentwood, NY, 11717. (516) 434-MOST.
email: Mostmom@pipeline.com

Twins Magazine. Bimonthly publications for families of multiples. (800) 328-3211.

National Organization of Mothers of Twins Clubs, Inc. Support groups for parents of twins. P.O. Box 23188, Albuquerque, NM 87192-1188 (505) 275-0955

The Triplet Connection. Support for parents of triplets, P.O. Box 99571, Stockton, CA 95209, (209) 474-0885.

Twin to Twin Transfusion Syndrome Foundation. Dedicated to providing educational, emotional, and financial support to families and caregivers before, during, and after pregnancies diagnosed with twin to twin transfusion syndrome. Dedicated to saving the babies, improving their future health and care, and keeping families together.
National Office: 411 Longbeach Parkway, Bay Village, Ohio 44140. (440) 899-TTTS.